Archive for the ‘diagnosis’ Tag

Tell me how you really feel

So, why am I blogging?

Well, right now my goal is to have a record of what works and what doesn’t. Also to have a place to keep information organized that I find online. Like my “safe foods” and “foods to avoid” lists. Maybe in the future I’ll meet the 15 other people on earth with this diagnosis and we’ll all talk on a Ning forum.

I think I will have two types of posts. The first will be the accounting of what I ate for the day and the effects it had. I categorized those types of posts as Meal Check-Ins. The second will be my thoughts. I’ve categorized those as Ramblings. I think I should also have a third type of posts that will be more about the medical side of LRD.  

How do I feel about this diagnosis?

On one hand it’s like people say – it’s a relief to finally have a diagnosis. On the other hand, I don’t know how I feel. I only know why I feel.

I feel because this is a life changing diagnosis. I can’t go on clearing my throat every time I eat or drink something. I can’t keep taking the chance of choking. I certainly can’t keep coughing like this. I feel like I will never be free. Either I change my habits or suffer the consequences.

There! I said it. It’s about losing my freedom and my youth. I have my very first old people’s disease. This will never, ever go away.

I used to worry about getting diabetes. My father and my mother’s father both died of the disease. I didn’t want to have to change my eating habits and give up sugar. So now I get this obscure disease that’s forcing me to do something similar. The main difference is that I have to give up fat, not sugar. This doesn’t mean I won’t ever get diabetes, either. I may still get it and have to give up both fat and sugar. That will suck.

Today I will change my habits. Check in with me in a month and see how I feel then!